Music phenomenon on YouTube has MPS VI disease

• April 28, 2024

Keenan Cahill, newly international phenomenon in Youtube , is a teenager who apart from having enjoyed the presence of David Guetta Y 50 Cent In his homemade music videos and being seen by millions of people around the world, he suffers from a rare genetic disease called mucopolysaccharidosis or MPS disease .

The boy born in 1995 in Illinois, United States, is one of the one thousand 100 people who suffer this year. hereditary disease caused by a enzyme deficiency .

Individuals who suffer from it can not degrade certain glycosaminoglycans, and have a deficiency in the enzyme known as arylsulfatase B or ASB. The Enzyme insufficiency it produces multiple bone disorders, and generalized clinical manifestations frequently as early childhood.

The condition can appear in different stages of life, affect organic systems, and the speed and severity as it is presented is variable. The MPS VI It weakens the body over time and is associated with a shorter life expectancy, so early detection is key to controlling it.

The disease was discovered by the scientists Maroteaux, Llamy and collaborators, for which reason it is also referred to as Maroteaux Lamy's disease .

Currently there is no cure for MPX VI, but if there are treatment options that improve the quality of life and slow down the evolution of the disease.

Keenan Cahill is attended at the Children's Memorial Hospital in Chicago, with one of the most expensive treatments in the world , which is applied every Thursday and approaches the 350 thousand dollars a year.

Source: Maroteaux-lamy.com and WGN9 Morning News Chicago.

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