• April 24, 2024

Since two years ago, Lili what has broken the stereotypes of beauty by becoming one of the bloggers most famous in Youtube , despite suffering from McCune-Albright syndrome , a disease that deforms your face.

She is a great example of life. At 20 he already has more than 100 thousand followers who applaud his advice to always look attractive. This is an impulse for the young Russian woman who day after day fights against her illness.

Even Lili Lo accepts being a person with "disability", but this does not stop her from doing what she likes and achieving her dreams.

I love makeup and upload my videos to YouTube to give something to people "

But why is his face deformed?

Lili suffers McCune-Albright syndrome and, according to the IUnited States Health Institutes , is a genetic disease that affects the structure of the bones and the color of the skin.

Its main symptoms are bone fractures , deformities of the bones of the face, gigantism and irregular brown spots (mainly on the back).

The specialists detail that there is no specific treatment for this syndrome, since it can be controlled with some drugs that inhibit the production of hormones such as estrogen, which are responsible for growth.

If the deformations are very pronounced, you can resort to the surgery . But in the case of Lili Lo , it does not bother him to show himself as he is, on the contrary he enjoys it.

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Video Medicine: His Face Was Deformed by Flesh- Eating Fungus | Now He Has Eyes and Nose Again (April 2024).